Ketogenic Diets by Eric H. Kossoff & John M. Freeman & Zahava Turner & James E. Rubenstein

Author:Eric H. Kossoff & John M. Freeman & Zahava Turner & James E. Rubenstein
Language: eng
Format: epub
Publisher: Demos Medical Publishing
Published: 2011-07-15T16:00:00+00:00

FIGURE 13.2

Courtesy of Matthew’s Friends.

The Carson Harris Foundation (www.carsonharrisfoundation.org)

This parent support group was created in Baltimore in 2007 by two parents, Gerry and Michael Harris, in response to the successful treatment of their infant daughter Carson at our center. Carson had infantile spasms and was offered the ketogenic diet as an initial treatment in addition to steroids and vigabatrin. The diet worked within days, and Carson was kept on the diet for 6 months total. She is now 5 years old and completely normal. The Harris family created the Foundation and ran a highly successful fundraiser (Carson’s FeelGood Fest, with Adam Duritz of the Counting Crows) to fund research related to the ketogenic diet. Gerry Harris also now runs our Johns Hopkins parent support group and, along with about 20 other families, will chat with families during their ketogenic diet admission week. Their message of encouraging neurologists to offer the diet much earlier in the course of epilepsy is at the heart of their Foundation.

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