Why Do You Do That? by Chowdhury Uttom;Robertson Mary;

Author:Chowdhury, Uttom;Robertson, Mary; [Chowdhury, Uttom and Robertson, Mary]
Language: eng
Format: epub
Publisher: Jessica Kingsley Publishers

Nellie, aged 15 (Australia)

In the eyes of a child

In the eyes of a child

Every day is worth living

Every sin is worth forgiving

In the eyes of a child

Nothing can go wrong

And even harsh words can seem like a song

In the eyes of a child

Everyone is the same

And no-one needs to be ashamed – TS is just a name

I wish I saw everything through the eyes of a child

If I saw everything so black and white

Then maybe happiness would not seem so out of sight

Matthew, aged 9 (UK)

Hi, my name is Matthew. I’m 9 years old and I have Tourette Syndrome.

My story started about two years ago. I had a nasty cough and a cold that I couldn’t get rid of, even though my mum took me to the doctor’s and I had lots of medicines. When I did eventually get rid of the cough and cold, I was left with a ‘gulping’ sound, which I felt I had to do, even though there was no real reason for me to do it.

A short time passed and I started to blink my eyes very fast and make big frowns. Some of my school friends found this funny, because when I frowned, my whole scalp moved forward – something which I cannot do now, even when thinking about it! After this, I started moving my whole head and neck in an ‘S’ shape. Sometimes my school friends would moan at me and tell me to stop doing it, but I couldn’t stop it and I had no control over what I was doing. I don’t think they believed me.

This seemed to go on for months. Mum took me back to the doctor’s several times and I was sent to the local children’s hospital. The worst bit about going there was that I had to have a blood test. Even though they put on some magic cream before they did the blood test, I still didn’t like having it done. I also had a CT brain scan. This wasn’t painful but I had to lie still on a bed for about 30 minutes, as I went inside a big tunnel and the machine made some strange sounds. All my tests came back normal which was good in a way, but I still didn’t know what was the matter with me.

Mum had a feeling that she knew what the problem was, and so Mum and Dad took me to see a consultant in London who is a specialist in tics. The consultant saw me and was really nice. He said I had Tourette Syndrome. Shortly after seeing him, I started taking some tablets called clonidine to help me cope with my movements. During this time my movements kept changing. One of the hardest things to deal with was not knowing what movements I was going to have, and when I was going to have them. The movements I have had included tapping on tables and desks, my leg twitching and kicking out under the table, arms being stretched out suddenly and shaking them and making a funny ‘mmmm’ sound.

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