From Whispers to Shouts by Elaine Schattner
Author:Elaine Schattner
Language: eng
Format: epub
Tags: SOC057000, Social Science/Disease & Health Issues, HEA039030, Health & Fitness/Diseases & Conditions/Cancer
Publisher: Columbia University Press
Published: 2023-03-07T00:00:00+00:00
More and increasingly granular cancer charities formed, expanding the ways people could contribute and, essentially, divvying the âcause.â In 2001, a group of Chicago-area lung cancer patients, horrified by their prognosis, established LUNGevity to support investigations into their disease.132,133 Two new sarcoma organizations adopted complementary missions: the Sarcoma Foundation of America promoted research, while the Sarcoma Alliance sponsored awareness, peer support, and educational programs.134,135
Some cancer charities appealed to people in particular lines of work. The St. Baldrickâs Foundation, for instance, began when a group of men in the insurance industry decided to support pediatric cancer research by shaving their heads. After an inaugural fundraising event at a New York City pub on St. Patrickâs Day in 2000, St. Baldrickâs (a fictitious name) took off among firefighters and police officers in New York, then elsewhere. So far itâs raised and distributed over $322 million for childhood cancer research.136â138 Meanwhile, the V Foundation (âVâ for âVictory Over Cancerâ) became popular among professional athletes, executives, and media and sports figures. North Carolina State basketball coach Jim Valvano initiated this charity before his 1993 death from cancer; the V Foundation became Valvanoâs legacy.139,140
Niche agencies like the Inflammatory Breast Cancer Research Foundation and Triple Negative Breast Cancer Foundation gained reach on the web. The Metastatic Breast Cancer Network arranged educational conferences for stage 4 patients and caregivers, while Breastcancer.org vetted online information and managed message boards. The Pink Fund began providing financial support for patientsâ nonmedical expenses like rent or childcare. Some nonprofits targeted particular demographics. Sisters Network, based in Houston since 1994, Cierra Sisters in Seattle, and later Tigerlily, based in Virginia, center their advocacy on affected Black people and young patients. In California, Latinas Contra Cancer connect affected Hispanics. Later groups like the Blue Wave and, later, Male Breast Cancer Coalition, raise awareness of breast cancer occurring in men. Sharsheret, based in New Jersey, holds programs for Jewish cancer patients and caregivers. There are many examples.141â152
The biggest new player is Stand Up To Cancer (SU2C), an Entertainment Industry Foundation offshoot conceived by a few determined women in show businessâKatie Couric, TV producer Noreen Fraser, former Paramount Pictures chair and CEO Sherry Lansing, and film producer Laura Ziskin, among others. On Friday evening of the 2008 Labor Day weekend, they held the first SU2C telethon in a Los Angeles theater. Thanks to the womenâs connections, all three major TV networksâABC, CBS, and NBCâbroadcast this event. In a simulcast performance, Beyoncé and others sang âJust Stand Up,â a song crafted for the fundraiser, at a âFashion Rocks New Yorkâ benefit. That weekendâs telethon raised over $100 million, most of which was distributed to scientists through SU2Câs partnership with the American Association for Cancer Research. The telethons have continued biennially, drawing superstar entertainers. During the 2012 telethon, Taylor Swift debuted a heartbreaking song, âRonan,â about a child with cancer; during an SU2C telethon in the United Kingdom, the actor Samuel L. Jackson plugged his âLove the Gloveâ campaign for prostate cancer screening.153â155
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