Making Healthcare Safe by Lucian L. Leape

Making Healthcare Safe by Lucian L. Leape

Author:Lucian L. Leape
Language: eng
Format: epub
ISBN: 9783030711238
Publisher: Springer International Publishing

Patient and Consumer Involvement—Patients for Patient Safety (P4PS )

Liam Donaldson’s passion for patient safety was rooted in his deep concern for the victims—the injured patients. He was moved by his personal experience as a physician, as well as the writings of Charles Vincent, one of the first to call attention to the psychological impact of unanticipated harm on the patient [5]. On the various occasions when I had the opportunity to hear Donaldson speak, I was impressed that he started every talk on patient safety with a story of a patient. That was the point, that was why we were here.

The Alliance’s second major early initiative, Patients for Patient Safety, was his mechanism for involving patients in the solution. Launched in 2004, it was based on the recognition that the patient and family have unique information because they are the only ones present through the entire continuum of care, which may have involved care from multiple providers at different institutions. Those who have experienced harm have special insights concerning systems failures. It would seem obvious that they should play a central role in efforts to improve the quality and safety of health care around the world. Patients for Patient Safety (P4PS ) would tap that resource.

Founding leaders included Margaret Murphy from Ireland, who also advised the UK National Institute for Healthcare Research, Stephanie Newall from Australia, and Sue Sheridan and Helen Haskell from the USA. All of them had lost children or a spouse as the result of medical errors, and all were, and still are, active and effective leaders in changing policy in their local and national environments. They were motivated to give meaning to their tragedies by sharing their experiences and advocating for change.

The WHO convened the first Patients for Patient Safety workshop in London in 2005. Participants developed the “London Declaration” that enunciated the common vision and commitment for positive engagement of patients in their care. It called for honesty, openness, and transparency, making reduction of health-care errors a basic human right, and for promoting programs for patient safety and patient empowerment by dialogue with all partners (Appendix 14.1).

At this meeting, P4PS created a global network of patients, consumers, caregivers, and consumer organizations to support patient involvement in patient safety programs, both within countries and in the global programs of the World Alliance for Patient Safety [6].

The Patients for Patient Safety network has continued to grow. By 2012 it had 250 members in 52 countries. They are champions for patient engagement and empowerment on hospital boards, medical school councils, governmental policy groups, and professional conferences around the world. The patient’s voice is being heard.


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