The Moulster and Griffiths Learning Disability Nursing Model by Gweneth Moulster;Jane Iorizzo;Sarah Ames;Joshua Kernohan;

Author:Gweneth Moulster;Jane Iorizzo;Sarah Ames;Joshua Kernohan; [Неизв.]
Language: eng
Format: epub, pdf
ISBN: 9781784508661
Publisher: Jessica Kingsley Publishers
Published: 2019-03-18T20:00:00+00:00

[Lauretta] Sally did not have a social worker, because presumably it was not deemed necessary. We were never asked if we wanted one. Perhaps it was because her health was good. We had no other support (other than carer financial benefits), just the GP when necessary. A social worker might have been helpful in giving us a broader awareness of the schools available, and in facing down the opposition from council bureaucracy when we did choose a school. In the absence of such input, it is difficult to know just how much assistance we could have expected – we have since seen both the best and the worst of such support, and certainly the latter would have been the proverbial ‘chocolate teapot’!

When Sally was 3 years old she went to the same playgroup as our other two for a couple of days a week. We were keen she should go to mainstream school and, after a lot of fighting with the education authority and with the help of the charismatic headteacher, she went to our local primary school.

[Sally] I really liked my headmaster; he was very nice and kind and he was funny too.

[Lauretta] Sally attended reception class twice then moved on through the school. When it came to senior school we decided she needed to go to a special school, as the gap between her and her peers had widened with age. Also, the schools closest to us all had over a thousand children, and would just swallow her up, and we were worried about bullying. Again, after a lot of fighting we got Sally to a special needs school in Guildford, which is about 30 miles from us. The travelling each day was difficult and tiring and Sally was missing out on all the after-school clubs and activities, so we fought for her to become a boarder there. After about a year and a tribunal cancelled at the last minute by the council conceding our case, she became a boarder and thrived.

Just to put in a little about Sally’s health – we were very lucky. She probably had a cough, cold or tonsillitis about once a year. She would be very ill, but probably only for about a week. Most of our experiences with the GP practice were extremely good. We were very fortunate as we had a very good GP who had a child with a disability himself and one of the other GPs in the practice had some personal experience too. They just seemed to have more awareness, sympathy and understanding. Even with such a good GP, sometimes they missed things. Once when Sally was a baby, we were on our way on holiday, driving to Plymouth to board a ferry to Spain. Sally had a cough and I had taken her to the doctor twice that week because I was concerned, but they had said she was ‘fine, just a cough’. Sally did get a lot of chest infections so maybe the doctors thought it was the same as usual.

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