Can I Tell You About Cerebral Palsy?: A Guide for Friends, Family and Professionals by Marion Stanton

Author:Marion Stanton [Stanton, Marion]
Language: eng
Format: epub
Tags: Juvenile Nonfiction, Disabilities & Special Needs, Health & Fitness, Physical Impairments, education, Special Education, Physical Disabilities
ISBN: 9780857008503
Google: 6BBtAgAAQBAJ
Publisher: Jessica Kingsley Publishers
Published: 2013-12-26T00:00:00+00:00

“A communication passport can be in a book or on a communication aid. If it’s on the communication aid it means I can explain about my life using my electronic voice. I have mine in both formats.”

“The communication passport tells people basic facts about me like where I come from, who my family are, what I like and don’t like and what I hope to do in the future. It is a quick way for someone to get to know me and handy for answering those questions everyone wants to ask about me. The teacher has to look after the whole class, so a teacher who is qualified in AAC and knows about cerebral palsy comes to see me every week. She spends the day with me and my teaching assistants (TAs). Sometimes she comes to lessons to see how I am coping with the curriculum. She also helps me with my writing, reading and spelling using programmes that have been specially written for students who use AAC. She gives my TAs ideas about how to adapt the curriculum, and does some of the adapting herself to give them an example. At my last annual review they talked about it being an ideal model for inclusion. Annual reviews are meetings that are held in school every year to make sure I am getting all the support I need. After the annual review my AAC teacher writes an individual education plan known as an IEP. This outlines goals for my learning and development. My AAC teacher is helping me with my literacy goals of comparing different types of texts. She and Judy work together to support me when I’m updating my communication passport.”

“Sometimes my local team of therapists and my school need advice from a specialist centre who know lots about AAC and offer training and assessments. Chris from an organisation that supports people who use AAC visits every couple of months to give me and my team advice. He has helped me to use AAC in lessons, so that sometimes I actually finish a piece of work at the same time as everyone else. They taught my TAs how to adapt the curriculum using special software that I can eye gaze to. My teacher has been on one of their training courses on how to include disabled kids in mainstream school. My mum goes to this big conference every year run by Communication Matters. They are the national organisations supporting people who use AAC and the people who help them.”

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