Improving the Efficiency and Effectiveness of Genomic Science Translation: Workshop Summary by Sarah H. Beachy

Author:Sarah H. Beachy
Language: eng
Format: epub
Publisher: The National Academies Press
Published: 2014-05-02T00:00:00+00:00

5

Role of Advocacy in Facilitating Translation of Basic Scientific Research

Important Points Highlighted by Individual Speakers

• Patient advocacy organizations are uniquely positioned to help convene stakeholders involved in the biomedical research ecosystem to prioritize goals that improve patient outcomes.

• Advocacy groups have identified innovative ways to work with academia and the private sector by encouraging them to embrace novel models for risk sharing.

• Foundations partner with other organizations to promote networks that share and accelerate the identification of treatments for patients.

• Advocacy groups are willing to bear more of the risk on innovative projects to advance early development and generate information that will attract larger funders for the next phase.

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